About
Category:
Professional Interest Areas (PIAs)
Description:
This PIA was established in 2022.
Executive Committee
Chair: Diana Karamacoska
Vice Chair: Naaheed Mukadam
Programs Chair: Belén Custodio
Communications Chair: Nancy Brown
Lived Experience Advisor: Tom Hennessy
Student Representative: Om Bodkhe
General Committee Member: Jennifer Bethell
General Committee Member: Frances Kisiero
Immediate Past Chair: Sarah Walter
(Next election cycle: March 2028)
#ParticipantPIA
Access:
ISTAART Group
Members:
458
Overview
Research for dementia therapeutics and care occurs in a world that is constantly changing. We can improve accessibility and meaningfulness of research by integrating perspectives of participants in the design and conduct of research, as well as in the way results are disseminated. A global forum is needed for researchers to share best practices on how to partner with participants, as well as opportunities to learn directly from the lived experiences of a diverse group of research participants. This PIA will work with existing PIAs and leverage existing groups to ensure broad access and applicability.
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