About
Category:
Professional Interest Areas (PIAs)
Description:
This PIA was established in 2022.
Executive Committee
Chair: Diana Karamacoska
Vice Chair: Araya Dimtsu Assfaw
Programs Chair: Allison Gibson
Communications Chair: Jess Jiang
Public and Patient Involvement (PPI) Chair: Sherril Gelmon
Student Member: Belén Custodio
Steering Committee Member: Jennifer Bethell
Steering Committee Member: Francesca Farina
Steering Committee Member: Crystal Glover
Steering Committee Member: Sarah Gregory
Immediate Past Chair: Sarah Walter
(Next election cycle: March 2026)
#ParticipantPIA
Access:
ISTAART Group
Members:
315
Overview
Research for dementia therapeutics and care occurs in a world that is constantly changing. We can improve accessibility and meaningfulness of research by integrating perspectives of participants in the design and conduct of research, as well as in the way results are disseminated. A global forum is needed for researchers to share best practices on how to partner with participants, as well as opportunities to learn directly from the lived experiences of a diverse group of research participants. This PIA will work with existing PIAs and leverage existing groups to ensure broad access and applicability.